I guess I'm doing this more for myself and Sam in years to come than because I think anyone else will actually want to read it... But having spent Friday discussing how to deal with the developments of a disabled child, I thought it would be good to record an honest account of how we feel on a day to day basis - maybe so that when I look back in times to come I see it wasn't all roses, or all thorns!
So this is us saying 'hi' - I'm Sara, I'm 24. My son Sam is three and a half, and was diagnosed at birth with Down's Syndrome. In the past three years he has had bowel surgery; numerous scans to diagnose and monitor his heart condition (which thankfully seems to be rectifying itself as he grows); insertion of grommets; months of physiotherapy; ongoing speach and language therapy; paediatric checks; and lots more that I can't even remember! He's also busy doing the usual childhood stuff - arguing with (and losing to) chairs so needing his head glued back together, bumps and bruises and grazes all the time, tantrums etc....
So what about the name of my blog? Well, we've not long moved house and I was very sad that on arrival we had to chop down our huge cherry trees due to the damage they were causing - I've pledged to (eventually) plant a new one in a better location - maybe a pot! And the tulips refers to a poem/essay called 'Welcome to Holland', written by Emily Perl Kingsley in 1987. I'll post it in a minute!
That's probably quite long enough for a first post, let's see how we go :)